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Associations Ask NIH to Clarify Policies on Genomic Data Sharing

AAU, the Association of Public and Land-grant Universities (APLU), and the Council on Governmental Relations (COGR) submitted a letter to NIH in response to the agency’s Request for Comments on its Proposal to Update Data Management of Genomic Summary Results Under the NIH Genomic Data Sharing Policy. The joint letter requests NIH clarify that the consent requirements detailed in the notice are limited to prospective collections and agrees that summary genomic data results should be provided through appropriate controlled access.

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